Angry Conversations with God:

A Snarky But Authentic Spiritual Memoir

Got your attention, huh?  Susan E. Isaacs wrote the book with that title. I had to explore her story so I got it from the library.

Summer reading lists appear everywhere this time of year. Oprah’s magazine, the newspaper, Parade (that slick section of the Sunday paper that hides in with the ads and comics), blogs I read online. The NPR website must have a list–I haven’t looked.

I don’t buy books much anymore. Partly because the retired man I live with and I have a fixed income these days instead of a refillable well of money.  Partly because I have so many books already that some live in a big Rubbermaid bin in the corner of my office behind the open door. They call to be released from their box every time I notice the blue bin in the corner.  Not so good feng shui for creativity.

I’ve rediscovered the library.  When a book on a list looks interesting, I add it to the Books list on the Notes app on my phone.  (Just writing that cracks me up.) Or I go to my computer and add it to my Wishlist on the Greensboro Public Library website.  Isn’t the internet great? I never remember what the books are about later so I just randomly pick one when I request a specific book be sent to the branch closest to me.  At least I don’t waste money on so-so books.

These days I allow myself not to finish a book that doesn’t interest or entertain me.  I couldn’t do that when I was younger.  (Why?) Now I figure I don’t have the time to waste.  I feel bad for the writer, even though I’m the only one who knows I didn’t finish.  Some books I slam shut astonished that some publisher gave the author a contract.

I’m almost halfway through Angry Conversations With God.  Susan E. Isaacs takes God to couples counseling with an ex-pastor therapist.  The book includes dialogue with God, Jesus, herself and the ex-pastor therapist.  The book is witty, a tad irreverent and funny.  It’s also thought-provoking. And as goofy as it sounds.

Isaacs is an actress/comedian, and participates in improv performances. She has plenty of reasons to be mad at God. She works on her relationship with God through role play.  I can’t decide if it’s just too cute.  I keep reading so I think it has something for me to ponder.

How is my relationship with God?

“What do you do for fun?” every counselor, therapist, minister, friend asks.  The question nags at me every time someone asks.

What do God and I do for fun?

I need to ponder that some more.

What do you and God do for fun?

(to be continued…)

Does It Matter?

Human bodies are complex and mysterious and keep on changing.

Some of the early stuff I expected–periods and cramps (and sometimes being glad when they appeared), groping of various parts by others, and complexion issues like pimples and eventually laugh lines.

As I passed 40 and 50 and approached and passed 60, surprises popped up.

During the time I colored my hair brown, I started seeing grey hairs in my eyebrows.  I used Just for Men Mustache and Beard dye to color them, even though the box said not to.  Now, with grey hair on my head, I can see some brown.  But I didn’t know my eyebrow hairs would get sparse.  I don’t know what to do about that, other than not look at them.

A couple of years ago I read in a women’s magazine about all the things plastic surgery can fix.  One was saggy eyelids.  That day I looked in the mirror–I had saggy eyelids!  Now I notice every time I put on mascara.

I’ve always known about cellulite on the backs of my thighs.  Everyone deals with that, right?  I didn’t know that my leg skin would sag.  I laugh and blame it on gravity, but really I am fascinated and horrified each time I look in the mirror in my underwear.  Do I think it might go away while I sleep?

Then we get to the whole menopause transition thing.  My 1st hot flash hit on a hot August day while I helped my youngest child pack for her first semester of college.  Not the last time I saw a connection to emotional stress.  They lasted for years.

For about 3 years during that time, I exhibited intermittent, long-lasting PMS symptoms.  My husband said I was nuts and I thought for a long time he made it up or at least exaggerated.  He was right.  I was an emotional bomb that could go off at any moment.  It helped to have friends going through the same stuff.  After a hysterectomy, the passage of time and some estrogen therapy, I settled back into my normal level of volatility and drama.

My 90-year-old aunt is here visiting us.  She flew–alone–from Iowa to NC.  She calls it “the trip from hell.”  She had a delay on the first leg, a missed connection in Detroit, a later flight that sat 2 hours on the tarmac because they couldn’t unhook some tether, and a twenty-minute wait for a parking spot at the Raleigh airport.  Original arrival time was 7:30 pm.  We finally saw her come up the hall toward us about 11:30 pm.  We got to our house after 1:00 am.  She was in better shape than either of us.  (We were up way past our bedtime!)

All the way home, she told us about the nice people she met along the way who helped her and talked with her.  She believes that there is something of God in each of us (she is a lifelong Quaker) and that most people are basically good.  And with that attitude, they are.  Her life, like all of us, has had tragedies and difficulties and challenges.  She sees the glass as half-full and each day as full of possibilities.

Acceptance of things as they are is a life-long challenge.  The older I get the easier it is to laugh and surrender my need to control.  Maybe by 90, I’ll get the hang of it.

I’ve had a cancer scare.  Saggy eyelids and leg skin and sparse eyebrows are irrelevant.  I’m here and I’m glad.  And I’ve got to quit looking in mirrors with my glasses on.

Movin’ On

I don’t do resolutions anymore.  They’re always the same anyway.  Eat better.  Move my body more.  Take time for myself.  Stand up straight and do right.  Don’t lie.  Don’t cheat.  Don’t be afraid.

I do reflect on the year just past, though.

January 11, 2012:  Our 2nd grandchild (Margaret Jane–Maggie) was born.

February 25, 2012 (and all year long!):  Our first grandchild (Adaline) was 2.

April 2, 2012:  Our 3rd grandchild (Atticus), Adaline’s little brother, was born.

March and September, 2012:  Maggie had 2 heart surgeries and is all fixed and just like any other delightful almost-one-year-old.  (Thank you, Dr. Mill, at UNC Children’s Hospital!)

April-December 31, 2012 (and forever):  Adaline and Atticus pushed their parents to new levels of love, patience, and sleep deprivation.

January 1-December 31, 2012 (and as long as we live):  We loved them all.

2012 stretched and challenged me physically, emotionally, and spiritually.

So what were the gifts in this full year?

I have 3 healthy, happy, amazing grandchildren!  Christmas 2011 we had one.  Now we have 3.  Mind boggling and tiring and such fun, all at the same time.

I finally forgave myself for not being a “good enough” mother.  My daughters showed me that I WAS a good enough mom and that each day with two  little ones was hard.  A wound I carried in my heart for a long time starting healing.

I have 2 amazing, strong, loving daughters who are much better mothers than I was.  Luckily, we all mostly agree on how to parent.  My younger daughter, mother of 2, coaches her older sister and tells her, “It will get better.”

My husband and I learned to be more gentle with each other.  He is a good father and the best grandfather.  We are aware of time passing and our bodies changing and a drive to miss nothing!  We take care of each other.

I watch how we help our girls (both are close by) and I am painfully aware that my parents were never able to give me the same support and presence.  Now I know how much they missed and I am sad for all of us.

I value friends (and a therapist) who let me be honest and vulnerable.  I cannot do the hard stuff alone.  I tried that this year…again…and it didn’t work…again.

In 2012, I lost a sense of balance between my needs and my family’s needs.  In 2013, I want to do better.  I want to take care of myself, physically, emotionally, and spiritually.  I want to be alive for a long time!

I want to keep learning and growing and stretching and trying new things.  I want to play with my grandchildren.  Their laughs make everything else in the world go away and I am in the moment.  That’s the best gift of all.

I am very grateful.  Many times I had the sense that all of us were held in God’s (roomy) lap.  We were surrounded by prayers and we felt the strength and support and love of our community.

I’m not the same person I was on January 1, 2012.  Are you?  Is anyone?

Disabled

I asked the Social Security Administration of the US government to label me “disabled.”  The application process left me drained and depressed.

I listed my “Physical and Mental Conditions,” 6 of them.  I listed my “Doctors and Other Healthcare Professionals,” 5 of them.  I listed my “Medicines’”, 7 prescriptions.

The paralegal at the attorney’s office helped me with the last section, “Remarks.”  She asked questions, I talked about what all I can’t do, she suggested more specific words and she typed it into the application.  Here is what she wrote:

I can only walk 5-10 minutes due to joint deformities due to my Rheumatoid Arthritis.  I do not have an even, steady gait and use a cane at times as my doctor recommended.  This has caused me to have intermittent back aches.  I cannot stand long for the same reason.  I drop things a lot due to the weakness and deformities in my hands and fingers and cannot lift more than 10 pounds and even then I have to use both hands.  I have loss of dexterity and some of the joints are frozen in my hands.  I can’t do cross stitch anymore, either.  I cook much less now as I can’t safely lift heavy pots and pans nor stand very long.  I have trouble changing the sheets on the bed and I can’t clean my bathroom.  Even though I had non-Hodgkins lymphoma in the past, I no longer have any limitations or symptoms for that.  I started having Vertigo a few weeks ago and my heads spins when it hits.  In my latest blood work I was anemic.  I am fatigued easily now.

Wouldn’t you be depressed?  I was upset for a couple of days.  Then I listed things I CAN do.

I am resilient and strong and creatively adaptable.

I thank my husband for helping me when I ask and never complaining.  (Although he said one time if I have another knee replacement he might not be my primary caregiver.  The first one was rough.)  I thank him for not offering to help all the time.  He sits back and watches me struggle with tasks of daily living.  He says okay when I want to travel by myself (even the time after the cancer diagnosis when I told him I wanted to go to Paris by myself, which I did in 2006.)  I know he worries, but he doesn’t burden me with those thoughts.

I am grateful for my daughters who cheer me on, give me shit when that’s appropriate and worry together behind my back. I hope I model fierce, not stupid, independence.

I am grateful for my grandchildren,  my joy and reasons to take care of myself.  They know me only as I am today. I can’t lift them up by myself, though I can hold a sleeping baby for hours and cuddle on the couch really well.  I can’t change diapers anymore (hee hee) and everyone is okay with that.

I thank God for my family, friends and therapist who keep me functional and medical science for the medications and doctors and nurses who ease my discomfort.

I recognize that the people I know who are HIV positive teach me about acceptance, letting go, the power of faith, and living with pain in all its forms.

I am who I am because of my challenges, my limitations, and the lessons to be learned from them.

The letter from the Social Security Administration came last week.  “You are entitled to monthly disability benefits.  We found that you became disabled under our rules on March 31, 2009.”  (I wasn’t disabled on March 29?)

I shouted to my husband, “I qualified for disability!”  “Congratulations,” he said and we high-fived.

Is that something to celebrate?

I choose, most of the time, to celebrate and be proud of what I can do today.  I certainly get frustrated and upset at times.  I say bad words and even let myself cry a bit.  That’s just okay, as my friend Jan says.

We all have choices.  I choose to keep going, laugh as much as possible, and try to ask for help when it’s wise to do so.

The US Government says I am disabled.  I say, not really.  Who ya gonna believe?

Oh Say Can You See–From Below?

Crowds are hard for me.  I have a mild claustrophobia–I need to know I can get out, get to an exit.  I’m short and can’t stand on my tiptoes anymore, so I can’t ever see much beyond my body space.

When we went to Washington, DC, in January, 1993, for Bill Clinton’s Pre-Inauguration, I upset my family when I refused to push up into the crowd to get closer to the concert and speeches.  I told them to go ahead and I would wait by the big tree and they could find me afterward.  My daughters, 12 and 14, started walking off.  (Surprise.) My husband called them back, asking me if I was sure I couldn’t go closer.  He told them we all needed to stay together.  The girls glared at me.  We could kind of see everything on one of the big screens.

My friend Sarah asked me to go see Michelle Obama at UNC-Greensboro.  She lives within walking distance (for her not me) of Fleming Gym.  After some discussion of my limitations, (we needed to walk about 5 blocks and then stand for several hours) she offered to push me in a wheelchair.  She offered because she wanted me to go.  I was humbled by her generosity.  I really wanted to go so I swallowed my pride and said yes.

Sarah and I started on our Michelle Obama adventure.  The doors opened at 11:00, we got there at 11:10 (she was to speak at 1:15) and got into the line for disabled people.  They let all of us in first and guided us to a section to the right of the stage.  The other line stretched for blocks in the hot sun. Sarah and I ended up in the front row. She sat in a chair beside my wheelchair.  A railing, 10 feet of floor and a (female!) Secret Service agent separated us from the stage.  All the people outside our “fence” had to stand crowded together and many couldn’t see well.

I felt guilty.  I knew I couldn’t walk 5 blocks and then stand on my own for several hours. But I don’t usually think of myself as disabled so I felt like a cheater.  Until the end.

After her speech, Michelle Obama came down from the stage and started working her way around, shaking hands with the volunteers who had special tickets to be up close.  When people figured out she was headed for our section, they slipped under the little barrier and filled in the small open space in front of the wheelchairs.  Four rows of people slid in front of me.

I felt my mild claustrophobia stirring– I sat in my wheelchair, completely surrounded by standing people.  They stepped over my foot rests (almost falling on me) and rarely even looked down at me or spoke.  A few said “I’m sorry” but they still stood in front of me.  Rude.  I saw the top of Michelle Obama’s hair and her bald Secret Service agent’s head.

Ride in a wheelchair sometime in a public place.  You’ll see our world in a very different way–from below.  You will be invisible to many other people.

I learned curb cuts and level sidewalks and automatic door openers matter.  A lot.

So do compassion and courtesy and genuine concern for others.

Living Beyond the Warranty

Last week I wrote about my ailing computer.  It ran really slow and I was afraid it had early-onset dementia and would lose its memory.  Which contains a lot of my memory.

My computer and I are reunited.  It has a new hard drive.  Its memory is intact.  Now I can’t connect to iTunes. I need to connect to sync my iPhone calendar to my iCal (calendar) on my computer.  (That sounds ridiculous, doesn’t it?)

I see a pattern.  I increasingly rely on my tech-toys to back up my memory.  I’m okay with that. Really, it’s kind of cool.

Now I need a new hard drive for my body.  I celebrated my 60th birthday in March.  And, as a cancer survivor, I am grateful for every day.  However.  My parts are wearing out and beyond the warranty.  I don’t think I have enough time left to replace them one by one.

After 25 years of rheumatoid arthritis, I have artificial joints in my knuckles on one hand and a left knee replacement.  I set off the metal detector the last time I flew.  No one cared about my official card from DePuy describing my titanium knee.  I had to go into the total-body scanner.  On the inside I giggled about the poor guy in some little room who had to look at my body unfiltered by clothes.

I miss being independent.  My damaged hands frustrate me daily.  Now I’m anemic and so I have limited energy each day.  I choose my activities carefully.  I drive myself around town and go most anyplace I want, but I get tired and I feel very vulnerable in parking lots.

I want to replace everything at once.  A new hard drive rejuvenated my computer without losing any memory.  A rejuvenated Robin with intact memories and no loss of hard-won wisdom?  Perfect.

What would I do?

I’d pick up each grandchild with no fear of dropping or hurting them.

I’d swim laps without hanging on the wall to catch my breath.

I’d get on an airplane and fly to NYC or Paris.  Alone.

I’d clean my house all by myself.  (maybe!)

Or I could just accept the body I have and be grateful for medical science and my own determination and resilience.

I could find joy in each day and learn to ask for the help I need when I need it.

And pray.

Not my mother, not my father, but it’s me O Lord, standin’ in the need of prayer. *

I’ve always had my mother’s hair–wavy or curly, depending on the humidity, and lots of it. Mom greyed early and never colored her grey.  In the 1960′s people asked who “frosted” her hair; women actually paid money for the grey highlights that Mom grew naturally.

I was afraid to iron my hair so I tried Curl Free for my high school graduation.    It was June, 1970, in Raleigh, NC, and Dorton Arena at the NC State Fairgrounds was not air-conditioned.  I just wanted long, straight hair down the back of my blue graduation gown.   The pictures from that night show beautiful waves that got bigger and bigger in the humidity.  I hated it.

For a lot of years I judged my mother harshly.  I didn’t like the way my dad treated her and I couldn’t understand why she didn’t resist.  When my dad retired early and then went into a nursing home at 63 (the result of drinking, diabetes, and a stroke), she lived alone for the first time.  We moved them from Ohio to Greensboro and helped her buy a one-level 2-bedroom town house close to our neighborhood.  She spent her time reading and watching CNN.  I felt sorry for her.  Her life was disappearing and she hadn’t accomplished anything.

“I think I’m turning into my mother!’”

The same wavy grey hair circles my head.  My chair sits beside the aquarium with the huge catfish in the living room. I read the paper or The Hunger Games and drink my tea. Sometimes I watch MSNBC or Dr. Oz. My cell phone and the home phone are on the table beside me.  I’m ready if one of my daughters or a friend calls.  My body requires rest.

I wish I could tell my mother I understand now.  It’s okay to rest and reflect. She died in 1998.  Maybe she wasn’t depressed.  Maybe her accomplishment was getting to a resting place.

Peace, Mom.

* “Not my mother, not my father, but it’s me O Lord, standin’ in the need of prayer.”  (Click here and then on the title to listen to the hymn by John P. Kee)

Time Out

Adaline is learning about Time Out.  She is 2 1/4 years old with a 6-week-old baby brother.  It took a few weeks for her to start acting out.  Normal temper tantrums now erupt and she throws stuff.  (Directed at her mom and dad, not Atticus, thankfully.)

They consulted Dr. Sears’s Discipline Book.  (Yes, that’s the guy in the Time magazine article.) In our family, we solve problems with information.  Knowledge=Control, you know.

Dr. Sears suggests one minute of Time Out per year of age.  At first, her parents felt so bad about punishing her that they hugged and babied her after the Time Out.  I gently suggested the Time Out might not work well that way, since in the end, Adaline got the attention she was looking for, sightly delayed.  It’s all going better now, I hear.

I’ve spent the last week recovering…slowly…from pneumonia.  Dr. Green told me to stay away from my grandchildren.

Dr. Green put me in Time Out.  Or maybe God did.

“You’d feel awful if you got one of them sick, you know,”  say my daughters and my friends.

I know they’re right, but I’m in withdrawal!

Dr Green told me today that people our age (what??) can take a month to get our energy back after pneumonia.  Great.

My daughters consulted and asked me to please slow down because they need me.  Odd to be on the other side of care-taking.

I feel mortal today.  Angry and disappointed with my body, once again.  My vulnerability shocks me.

It is clear to me that I must stop “doing”.  So I am taking these days of healing to assess how I balance my commitments and my energy.

I have a book called The Extreme Art of Self-Care.  It is time to practice what I preach.

I want to my limited energy to matter.

Change is next on my agenda.  Damn it.

Writer’s Block Is Real

Here’s how I got it:

1.  Joined a Writer’s Group of the Triad Memoir Group with real, published writers.

2.  Went to a 2-day writing retreat with some really good writers.  We wrote and then read out loud to the group of 15 writers.  Did I mention how well they wrote?

3.  Got a stomach virus that kept my family away on Mother’s Day.

4.  Got pneumonia right after the stomach virus.

(I may never see my grandchildren again!)

I’ve read the cure for writer’s block is to just write.

One of my early blog posts was titled “I’m Workin’ On It”–please click here to check it out.

I’m workin’ on it–writer’s block and good health.

Got Sparkle?

After I stopped coloring my hair, I discovered Pantene Silver shampoo.  My hair sparkled in the sunlight.  I loved my grey hair.

Then Pantene discontinued the Silver line.  I searched the internet.  There wasn’t any, not even on ebay.  For months I used regular old Redken shampoo.  My hair was soft and manageable, but it didn’t sparkle.

I went to Sally Beauty Supply and bought a different brand of Silver shampoo.  It smelled weird and my hair didn’t sparkle.

I have easy hair.  For years, store brand stuff worked fine.  Now I wanted sparkle.  The woman who cuts my hair told me about Aveda shampoo for grey hair.  I bought a bottle of purple Aveda shampoo from her for $25.00.  It’s a big bottle, but maybe not $25 big.

The next morning I started the water for my shower and let it get hot.  I stepped into the shower and pulled the door shut.  My whole body relaxed as the hot water surrounded me.  I opened my eyes and reached for my new shampoo.

A stink bug* clung to the side wall  of the tub beside the shampoo bottle.  How did it keep from sliding off?

I wanted to use my new shampoo.  The stink bug gave me the creeps.  It was not cute.  I’ve never smelled a stink bug–an awful smell, I hear–because I’ve never squished a stink bug.  I knew a stink bug couldn’t hurt me, but still…

I was annoyed.  My hot shower was supposed to be a private moment of relaxed solitude.  I washed my hair with my expensive shampoo.  When I closed my eyes, I begged the stink bug not to jump on me.

I threw a cup of water on the stink bug and watched him ride the water to the drain.  He didn’t fit through the drain cover holes so I figured he’d drown.  Or survive and climb out and come looking for me.

My new shampoo does make my hair sparkle in the sunlight.  I like it.

*Click here for a picture and to learn more about stink bugs.