P’ease Pick Me Up

  “Amma, p’ease pick me up,” pleads Adaline.

But I must say,

“Can’t do it, my sweet girl.

Do you want to climb up on the couch and we can

eat some blueberries?”

F–k, I say in my head.

God help me.

Give me

hands, my hands that work.

I am Amma,

just as I am.

Kristin needs help.  She doesn’t ask.

Loss.

Love.

Maggie I can still pick up,

now, today.

Oh, please, will someone give me Atticus?

Quit trying?  Never, not ever.

Relaxation and

recuperation, they come later.

Stephanie worries.

She sees me struggle.

Tuesday I will play with them

under the trees outside.

Voices will sing and we will laugh.

Wednesday I will rest and maybe hurt.

X-rays of my hands and wrists and spine

yell at me to be careful.

Zebras at the zoo?  Let’s go!

(This is an alpha-poem (look at the first letter of each line) started during a workshop titled “Writing Through Grief and Loss” led by Ray McGinnis, author of Writing the Sacred)

Volunteer for Pain

Do you know rugby?  It’s sort of like football with no helmets or pads and lots of beer (that part was true when I was in college; I bet it still is.)  A young  I know played in the UNCG Women’s Rugby 10-year Reunion Rugby Game  yesterday.  The Alumni beat the current team.  She said on Facebook she’d probably last 10 minutes.  She played two 30-minute halves.  That is a badass!

I asked her how she felt today. She said, “I’m a little sore, but some of my teammates had it rough… A possible torn ACL, busted knees, bruises in the shape of cleat marks, etc. Tough girls!”

My comment back–”I will never understand volunteering for pain.”

Saturday, the retired man I live with and I accompanied 2 daughters, one son-in-law, and three grandchildren under the age of 3 to the Persimmon Festival in Colfax, NC.

We heard live music as we sat on scratchy hay bales, ate pork and beef BBQ, tasted apple cider pressed while we waited.  We were too late for persimmon pudding, but we did see some persimmons.  Brightly colored handmade quilts waved from a clothesline.  2 mules pulled a cart loaded with people.

Adaline sat on a bright red 1941 International Harvester tractor seat.  7-month-old Atticus rode on his mom’s back in an Ergo baby carrier.  After trying to nurse on her back (that’s what it looked like) he fell asleep.  Almost 10-month-old Maggie rode in the front seat of the double stroller and said “Hey!” to anyone who made eye contact.  She squealed in delight at any child who came near.

The sun lit up a Carolina blue sky.  A light breeze blew, making a sweatshirt  or a jacket feel cozy.  The BBQ smoker looked like a locomotive with a really fragrant smokestack.  The chainsaw sculptor captured my son-in-law.  The noise scared the little ones.  The whole thing was so small we could all wander around and still see each other.

I followed 2-3/4-year-old Adaline around.  It took a village to keep up with her;  I felt good enough to be part of the team.  I walked a lot on uneven terrain.  The retired man I live with said I was “4-wheelin’ it.”

I took the risk–I volunteered for day-after pain.  (My back hurts and my feet ache today.)

I’d do it again in a minute!

I still don’t understand rugby, though.

Supposed To Be About Pain

I sat down at my desk early this morning to write a blog post about pain.  Since then I have:

downloaded and subscribed to podcasts for This American Life and On Being with Krista Tippett (at least I didn’t actually listen to them),

reconstructed my iGoogle homepage that I somehow cancelled (it had a bunch of blog feeds so I had to look for and download each one I could remember I liked and read the ones I missed),

checked 3 different email accounts ( and wondered again whether to transfer the contact list from a very old Earthlink email account to my yahoo email that was hacked by someone who deleted my contact list, including email addresses that are nowhere else),

checked Facebook (which of course is the major time-sucker I always thought it would be) and watched a 2 minute you tube video about a law in Michigan protecting bullies who go after gay kids (click here to see it),

went back to yahoo email and looked at the link to my pregnant daughter’s “dream diaper bag“,

considered reading some of the blogs that appear enticingly when I open wordpress.com to get to Amma Ponders (but I didn’t),

and then finally started typing this list of all my ways to procrastinate.

Oh, and I gave you links to my wanderings so that you, too, can have a relaxing, non-challenging hour or so.  Just click on any of the words that are red.

You’re welcome.

W W J D?

(What would Jesus do?)

“I can’t usher or help with the Lord’s Supper.  And I can’t mentor the Boy Scouts either.”

He has been an active and faithful church member for years.  He has worshiped and participated regularly and enthusiastically.  He turned to his pastor for support months ago when he was diagnosed HIV positive.  He trusted his pastor with the truth, to be held in confidence.

A member of the congregation complained to the pastor.

This pastor told my friend he could not participate in the activities and fellowship of the church.  He could worship if he sat in the back row.

My friend feels hurt and betrayed.  He still believes God loves him just as he is.  He also believes God loves his pastor.

I am humbled by my friend’s genuine desire to forgive.

I am awed by such faith.

No, You Can’t!

Remember what 15 felt like?

“Can I...?”  “No, you can’t.”

“I want to…”  “No you can’t.”

“May I please…?”  “No.”

“Why not??”

I feel like that.  It’s my body saying “No, you can’t.”  And inside I’m screaming “Why not??”.

My rheumatoid arthritis flared up all week.  It was mid-90′s hot.  And humid.  I wanted to drive 4 hours to a weekend retreat for people who are HIV-positive from all over the southeast.  Only the dining room is air-conditioned at the rustic retreat center and the paths between buildings are uneven and unpaved.

“I can’t,” I told the director of the day center where I volunteer.  “I can do hot or pain, but not both.”

I’ve read several books lately about our bodies and our spirituality.  I see layers of metaphors in my decision to take care of myself.

I allowed myself to be sad for a day or so.  Limitations frustrate me.  And I realize some of the changes in my body can’t be fixed or reversed.  My granddaughter, at 15 months, can almost outrun me.  More metaphors.

I’m not what I thought I’d be at this point in my life.  (Is anyone?)  So I pray for willingness and acceptance.  And the continuing ability to laugh!

The Paper (or Cloth) Bag Story

Take your problems, all of them, from the tiniest annoyances to the most horrific, difficult challenges and put all those problems into a brown paper bag or a politically-correct cloth eco-bag.

Then imagine if everyone else took all of their problems, put them into their own bags and brought them to the center of town.

Think of how many bags there would be, all piled up in one big mountain of brown paper and brightly-colored cloth bags.

If you were told you could pick any bag of problems and take it home with you, do you think you’d want someone else’s problems?

(Story borrowed from The Faith Club, by Ranya Idliby, Suzanne Oliver, and Priscilla Warner)

“Better the devil you know than the one you don’t.”  The Familiar can be quite comfortable.  It’s predictable, we think.  It’s known.  We’ve practiced dealing with it. We assume we know how things will turn out and we get ready.

My body and I have lived with rheumatoid arthritis for over 20 years.  Pain and discomfort vary.  My pain–physical, emotional, spiritual–is invisible if I choose to disguise it with humor or stoicism.  So is yours.

Remember PacMan?  That’s how I pictured my arthritis in the beginning.  The disease was an enemy force of scary little critters using my blood vessels as a superhighway to randomly chomp on my joints.  I hated them and the medications I was trying were losing a lot of battles against them.

Eventually, I gave up the anger and war images.  I had to make peace with those mean monsters inside me.  If I could be compassionate and forgiving, they might be gentler.  So I prayed for willingness.

Today we are next-door neighbors inside my body, the critters and my Spirit.  Sometimes they are noisy and intrusive, but I can shut my windows and ignore the doorbell.  They are familiar and they could be worse.  I accept them as they are and I deal with them one day at a time.

I know how to do “hard”.  I’ve had practice.  We all have.  I know I can probably handle most any problem that pops up next.

If I could pick one bag from the pile, would I pick my own again?  I’m not sure.

Life Percolated

I can’t drink real coffee anymore.  I guess.

I’ve percolated a lot of life through my insides.

So much stuffed down there, so much acid.

 

I see the old-timey coffee pots on the gas stoves

in their little kitchens in the Project:

Irene

Betty

and in the bigger kitchens in houses

in Munhall and West Mifflin and Duquesne:

Mary

Margie

Julie

Millie.

So much love, so many women.

 

I just wanted a beer.

There were too many of them

and I didn’t know how to be in their world,

in their houses, in their lives.

Lots of food and always coffee.

 

But mom and dad’s–

cold

decaf

“Turn off the light”

not enough food.

Here I fit in, but I didn’t want to.

 

I wanted to know

how to live

like a grownup,

how to mother,

how to wife,

how to make real coffee in a percolator instead of decaf

in a Mr. Coffee that’s reheated later in the microwave because

we sure can’t pour that cold shit down the drain.

 

35–

I started to learn

from other women who had to learn once upon a time, too:

how to make real coffee in a Mr. Coffee

and that sugar can make feelings bearable

after I learned I had feelings

like anger and joy and fear and love.

But those women thought I was okay.

And they helped me see I could be funny and silly.

 

57–

I don’t drink real coffee anymore.

A while back it made my stomach really hurt

and my doctor described a bleeding ulcer’s risks

and I said OK.  Damn it.  No more coffee.

So then I tried decaf.

It didn’t taste good, any kind.

 

So I tried green tea.

It’s good for me.

Weak-looking,

but strong enough to be good enough.

 

Like me.

 

 

My Inner Two-Year-Old

Adaline is one now.  Her world is just fine unless she is hungry or tired.  Then someone takes care of her. No one expects her to be self-sufficient.  What does she have to be snotty about?  The one-year-old is usually quite content.

In a year, she will be 2.  Things will be different then, I think.

Disability came as a surprise for me after my knee replacement surgery a year ago.  I expected to hurt and hobble.  I didn’t know I would need help with everything, including going to the bathroom and bathing (which Mike insisted I do daily so my incision didn’t get infected).  I appreciate my husband’s patient and loving care through those weeks.

I wasn’t always gracious.  My inner two-year-old raged and cried and temper-tantrumed more than a few times.

I couldn’t put on a pair of pants by myself because my knee wouldn’t bend.

“Let me help.”  “I do it.”

I had to use a walker to get to the bathroom and then I had trouble standing up.

“Let me help.”  “I do it.”

I couldn’t stand up long enough to fix anything to eat.

“Let me help.”  “I do it.”

I will be sympathetic when Adaline says “I do it“, even if she can’t.

My knee is functioning well.  I am grateful daily for what I am able to do on my own.

I can take my own showers and go to the bathroom alone and even put on my pants easily.  Maybe one day that won’t be the case.  I do wonder if I should have long-term-care insurance.

Today, just for today, I did what I wanted.  My inner two-year-old is very grateful.

Broken Body, Healing Spirit

Have you seen the commercial for a rheumatoid arthritis drug that talks about the life you have and the life you want to live?  It is shrewd marketing.  Inject this powerful drug and you can do anything.

The hidden cost of chronic illness, because pain and fatigue are invisible, is that I pretend to be living the life I want to live rather than being honest about the life I am living.  As Mary C. Earle writes in her book, Broken Body, Healing Spirit, there are sometimes two people living inside me and one is a liar.

What fear or perceived defect do you hide from the world?

Have you had the flu or bad allergies and gone to work anyway?  Do you have back pain?  Grief?  Migraines?  Fatigue?  Paralyzing anxiety?  Fear of what others will think?  Are you in recovery from addiction?  Or unsettled by the signs and symptoms of getting older?

Substitute your secret for “illness” as you read this quote from Broken Body, Healing Spirit (italics mine):

…a body that has been overwhelmed by illness is also a body where life dwells.  Disruptive, distressing, and acutely confusing, illness calls us to a deepening awareness of the wonder of the body, an awareness that we did not bring ourselves into being, and that it is through our embodied life that we encounter the presence of God…

Through illness, the embodied nature of our lives grabs our attention, and forces us to befriend the very flesh we thought betrayed us.  The body that we had taken for granted turns out to be a rich and varied text, full of layers of meaning and symbol.

Always, it comes back to powerlessness vs. control.  And I most want to control what I fear.  Until I have faith and trust, I will be afraid.  And I will miss a lot of fun stuff.

My husband has a big, yellow BMW motorcycle.  He rode it cross-country and back, alone.  He wants me to ride with him.  Once, I said yes; we rode around the neighborhood on quiet residential streets with no real traffic.   I trust my husband.  I know he would never deliberately hurt me.  All I could see from that rear perch was my body shattered into painful pieces.

New experiences are fun and invigorating for me–teaching a class, being in Paris alone for 5 days, going on a week-long silent retreat.  For Mike, riding the motorcycle is a form of meditation.  For me, it is like white-water rafting or parachuting.

I’ve lived with chronic illness for over 20 years.  Rarely have I said “I can’t”.  I can usually find adaptations and compromises that let me do most anything.  I want to be the free spirit that sees a lovely day and says “Let’s ride!”

I think it could be a prayer–”Your will, not mine be done.”

Prayer

Father, Mother, God
Thank you for your presence
during the hard and mean days.
For then we have you to lean upon.

Thank you for your presence
during the bright and sunny days,
for then we can share that which we have
with those who have less.

And thank you for your presence
during the Holy Days, for then we are able
to celebrate you and our families
and our friends.

For those who have no voice,
we ask you to speak.

For those who feel unworthy,
we ask you to pour your love out
in waterfalls of tenderness.

For those who live in pain,
we ask you to bathe them
in the river of your healing.

For those who are lonely, we ask
you to keep them company.

For those who are depressed,
we ask you to shower upon them
the light of hope.

Dear Creator, You, the borderless
sea of substance, we ask you to give to all the
world that which we need most–

Peace.

–Maya Angelou

Copyright (c) 12/2005  Maya Angelou