Today is World AIDS Day

Did you know that?

There is a giant red ribbon hanging on the front porch of the White House today.

December 1 is still World AIDS Day.  There still is no cure.  People still get sick and die because of AIDS.

People are also living much longer and are taking medicines that really do help slow the progress of the disease.

The drugs that work are very expensive and state and federal programs that help pay for them are in danger of being cut.

Sometimes the side effects and the dosing schedule are so difficult and intolerable that folks stop taking the drugs.

I spend a lot of time helping out at Higher Ground, a day center for people who are HIV positive.   It is a free-standing program of Triad Health Project, the local AIDS service organization.  Three days a week, every week, local churches and other groups provide lunch for 25-40 hungry clients and volunteers and the one paid staff person who tends the souls and cleans the toilets for all who come through the doors.

Higher Ground is a place of acceptance for many who have been turned away by family, churches, and friends.  Believe me when I say, God is in this place and miracles do happen here.  Like crack addicts who are able to stay clean and have their own apartments for the first time in their adult lives thanks to case managers at Triad Health Project and the support and love of peers at Higher Ground.  Or men like my friend Bill who has been HIV positive since the 1980’s.  He had a leg amputated above the knee a while back because of HIV complications and was back at “The House” a few weeks later, smiling.  Many volunteers over the years, from high school students to those of us with gray hair, have been profoundly touched by the courage and faith of the men and women who pass through Higher Ground.

Did you know all this was still happening?

Today, there is much more hope.  But AIDS is not gone.  If you can, please donate your time and/or money to a local AIDS service organization.  They still need you.

Triad Health Project’s vision statement:

We will stand together for as long as it takes until HIV/AIDS is no more, promoting enlightenment, dignity, acceptance, understanding, and love; demonstrating that we are not only enduring this epidemic, but also prevailing over it.

Still.

(I first wrote this in 2010. I re-post it every year. It’s all true. Still.)

 

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Published in: on December 1, 2019 at 9:19 am  Comments (2)  
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Today Is World AIDS Day

Did you know that?

December 1 is still World AIDS Day.  There still is no cure.  People still get sick and die because of HIV/AIDS.

People are also living much longer and are taking medicines that really do help slow the progress of the disease.

The drugs that work are very expensive and state and federal programs that help pay for them are in danger of being cut.

Sometimes the side effects and the dosing schedule are so difficult and intolerable that folks stop taking the drugs.

I spend a lot of time helping out at Higher Ground, a day center for people who are HIV positive.   It is a free-standing program of Triad Health Project, the local HIV/AIDS service organization.  Three days a week, every week, local churches and other groups provide lunch for 25-40 hungry clients and volunteers and the one paid staff person who tends the souls and cleans the toilets for all who come through the doors.

Higher Ground is a place of acceptance for many who have been turned away by family, churches, and friends.  Believe me when I say, God is in this place and miracles do happen here.  Like crack addicts who are able to stay clean and have their own apartments for the first time in their adult lives thanks to case managers at Triad Health Project and the support and love of peers at Higher Ground.  Or men like my friend Bill who has been HIV positive since the 1980’s.  He had a leg amputated above the knee a while back because of HIV complications and was back at “The House” a few weeks later, smiling.  Many volunteers over the years, from high school students to those of us with gray hair, have been profoundly touched by the courage and faith of the men and women who pass through Higher Ground.

Did you know all this was still happening?

Today, there is much more hope.  But AIDS is not gone.  If you can, please donate your time and/or money to a local AIDS service organization (see below).  They still need you.

Triad Health Project’s vision statement:

We will stand together for as long as it takes until HIV/AIDS is no more, promoting enlightenment, dignity, acceptance, understanding, and love; demonstrating that we are not only enduring this epidemic, but also prevailing over it.

Still.

Originally published December 1, 2010

Link to donate to Triad Health Project:  https://triadhealthproject.salsalabs.org/donate/index.html

Been a While

My blog website tells me it has been a loooong time since I’ve written anything. Over the last few years, I’ve read a number of books by writers about how they write–rituals, practices, habits, etc. Each one starts or ends with “Put your behind in the chair and start writing.”

Simple, yes. Also challenging.

I could give you excuses like being busier than usual or some extra doctor appointments. But I still don’t have a paying job. And I don’t live with small children. Just that retired man, who doesn’t require much attention. I wish I could say I’d been going through closets and drawers and bookshelves purging my belongings so we can downsize. I’d be lying.

I did start jotting down random thoughts and ideas this week. Here’s what I’ve got.

1.I read an essay recently written by a dad whose daughter wanted to buy a “distressed” pair of jeans, the kind that come already ripped and faded. Like all of us who once thought we were rebels, he was appalled at the cost of the jeans and also shocked by how repelled he was by the raggediness.

The article made me remember when my older daughter bought a townhouse in Charlotte. She got to choose flooring and paint. She chose “distressed” dark wood flooring. (like this picture) Not what I would have picked, but she liked it. It was actually an upgrade from the basic flooring.

We walk around our house these days, the retired man I live with and I, and discuss what we need to do to get it ready to sell. I refuse to put thousands of dollars into the house and then leave. We do both agree that the upstairs hardwood floors need to be refinished. They looked “distressed” after 25 years of wear and tear.

Huh?

2.I drove 3 1/2 hours to the NC mountains a few months ago to visit my college roommate. She lives in a  “tiny house”  on the side of a mountain with a gigantic Newfoundland dog and 2 small dogs. Kitty and I talked–a lot–and we ate and we went on a skinny, scary mountain road with no guardrail and a very long way down on my side to see wild moose (we saw the fleeing backside of one) and then we watched Hillary Clinton in her white pantsuit accept the nomination to be the 1st woman president. It was great.

I stayed at a close-by hotel. (We are way past sharing space like a dorm room!) The morning I left, I used Yelp to find a locally owned diner for breakfast. When I got ready to leave, I asked the waitress for my check and she told me someone had already paid for me! I asked if she’d tell me who it was and she said she couldn’t. It felt weird to walk out without paying. But if the person was still there, he/she saw me smile like I hadn’t smiled in a good while. I smiled all the way downhill to home. Now I need to pay it forward.

3.I had my annual physical this week. I told my doctor that even with all my various medical challenges and surgeries and daily medications, I consider myself reasonably healthy for my age. On a 1-10 scale of healthiness, I’d say I’m 7-8. He just smiled.

The glass is half full.

It’s all about attitude.

4.I started thinking the other day about which of my daughters would have a harder time when I die. I have no idea what triggered that train of thought.  They will both suffer, I think, each in her own unique way. I pray they will be able to help each other.

I didn’t linger long in that place.

I did start thinking about my relationship with my mother and how I grieved when she died. For the first time I was grateful we hadn’t been real close. The loss and hurt were maybe less intense.

Another place I didn’t want to linger.

5.You know those recipe videos that pop up on Facebook with 2 hands dumping and mixing ingredients? I re-post the ones that look good to me (sorry, friends). That way they are on my timeline so I can find them later. I have NEVER gone to my timeline and printed out one of the recipes. I don’t know why not. They’re usually easy and often crockpot recipes. I have more energy early in the day so crockpot recipes work well for me.

I think I’ll search out and print some after I finish writing.

6.I used to pride myself on always being on time. When my girls were little, I had a friend who had a daughter about the same age who was equally prompt. Gail and I would often pull up at some event like a birthday party at the same time. We would laugh in a “aren’t we just the best” way.

I lost my ability to always be on time. I’m convinced I developed late-onset ADD with menopause that will never leave me.

Yesterday, I managed to get ready to go somewhere on time. My hair was all the way dry, my outfit worked, I wasn’t rushed. I felt good. The retired man I live with pulled into the garage after his Men’s Breakfast just as I went out to my car. He came around and gave me a hug.

“Robin,” he said softly and sweetly, “you shirt is inside out.”

I looked down the front. No tag. “No, it’s not,” I said, like he’d said it was backwards.

“Take it off, ” he said. (Our garage faces the backyard.)

He was right. So much for having my act together

And that, my friends, is humility.

I need help.

From God.

From the retired man I live with.

And from my friends.

(I was still on time!)

 

 

Published in: on October 29, 2016 at 4:32 pm  Comments (3)  
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What’s Your Story?

Everybody has a story. I love to hear and be surprised by those stories.

I spent 3 days last week with 6 other people at an annual spiritual retreat on the NC coast. We spent some of the retreat time in silence. (Yes, we like that.) We gathered several times for group contemplative prayer (website).  We also ate Girl Scout cookies and talked and laughed a lot when we weren’t in silence.

I might not have picked these people off SpiritualFriend.com (an actual website!), but God brought us together through the programs of Shalem Institute for Spiritual Formation (website). I think God chuckles about that.

We all share an awareness of God’s presence. We recognize our need to be still enough and quiet enough to be led and guided by God. We pray for each other. And we enjoy our time together.

We learned more about each other as we shared our stories.  I get to hang out with some interesting people.

One woman was once a weather girl for 3 months in DC until, in her own words, “I was fired for being awful and wearing no make-up.”  She also worked for quite a while in the trust department of a major bank until she got MS. Now she has her own business selling handmade cards and posters. (Cheap Therapy, handcrafted paper art that celebrates life)

Another woman has her Ph.D in American Studies. She taught classes like Women in the Arts and Literature and Ecology at Eckerd College in St. Petersburg, FL.  Now, in retirement, she is a published poet and passionate about our Earth and its health.

One of the men is a Southern Baptist minister who serves as an interim pastor for churches who are searching for a new minister.  That means he learns about and helps to mediate all the opinions and factions that exist in any church and leads them (hopefully) to consensus about who they are and what they need in a pastor.  Can you imagine?  He also is a photographer.  He shared a magnificent sunrise photograph for us to sit with and ponder during our silent time.

One woman worked for a number of years in a Catholic parish, leading groups and formation classes. She recently retired. She has 9 grown children so she has always been a busy person. She is still figuring out just what to do with her free time. She started with de-cluttering in her house.  I need to follow her example.

The other man, African American, told us he marched with Martin Luther King, Jr., in Nashville, Tennessee, when he was 13.  He was once a long-distance truck driver and a Marine. When he left the Marines he went to seminary and is now an Episcopal priest. He led us in Holy Eucharist sitting on a hearth and wearing well-worn jeans and biker boots. I think God liked that.

In her younger days, another woman was a street performer in California.  She is a Unitarian Universalist minister. She is comfortable doing liturgical dance (a definition), which uptight me can’t imagine.  She and her husband started and run Plenty Fresh Food Bank (website), Neighbors Growing and Sharing Food, which is on Elephant Curve Rd. (best street name ever!) in southwest Virginia..

So, what stories do your friends have?

Ask them. You might be surprised.

Published in: on February 24, 2015 at 12:27 pm  Comments (9)  
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A Turtle Creates a Village

God, I offer myself to You–

to build with me and to do with me as You will.

Relieve me of the bondage of self,

that I may better do Your will.

Take away my difficulties, that victory over them

may bear witness to those I would help

of Your power, Your love, and Your way of life.

May I do Your will always.

(3rd Step Prayer from Alcoholics Anonymous)

I sat quietly with this prayer daily, starting in January, 2005.  It took the place of resolutions.

In late February, 2005, I found an odd lump in my groin.

On April 15, 2005, I was diagnosed with cancer–non-Hodgkins Lymphoma.

I had 2 malignant lymph nodes, but no symptoms and I felt fine.  After tests, the treatment plan was “watch and wait.” That took a while to accept. God and the doctor and I have “watched and waited” for almost 10 years.  Still no symptoms and no treatments. Dr Sherrill says at each checkup, “It’s still in remission.”

Go back and read that prayer again.  I’ll wait.

I started writing emails to a group of spiritual friends shortly after I was diagnosed with cancer.  I didn’t want to talk about it much, but I wanted people to pray for me and I felt compelled to share what happened and how I dealt with it, including my faith journey.

I’ve written before about being an introvert and a turtle.  When things get hard, I pull into my shell.  I’ve learned, though, that I can invite people in through my writing.  And I often feel pushed to write for this blog by a powerful and irresistible force.  I can resist for a while, but God starts writing in my head and it doesn’t go away.

This piece started forming in my head a couple of weeks ago.  I had cervical fusion surgery on December 2, 2014, to correct a place at the top of my spine that moved to a dangerous position because of damage from my rheumatoid arthritis.  A piece of my spine was impinging on my spinal column at the very top.  A fall or car accident could have ended my ability to breathe.

I’ve had several other surgeries, including a total knee, in the past 10 years, but nothing scared me like this one. It was “a big surgery,” Dr. Pool, the neurosurgeon told us. I asked the retired man I live with the morning of the surgery not to let them keep me alive on a ventilator if things went wrong.

The first couple of weeks after this surgery were very hard–lots of pain. I was grateful to be whole and breathing and alive.

Before the surgery, I started another email list of pray-ers.  And once again I could feel the power of the prayers. I don’t know how to explain that, but I know it’s real. I felt surrounded and encircled by God.

I try to tell God that I’ve fulfilled my 3rd Step Prayer obligations.  10 years is enough of this “take away my difficulties so I can show how God works in my life” stuff.  But more challenges come.

With each surgery, each setback, each test of patience and hope, I learn again that things will change.  And it’s all a bit easier when I remember God is with me. Not everything can be fixed completely. Sometimes it’s just different. Then I figure out how to live with it and keep going as best I can.

If I ever write a memoir, I think I’ll title it “Okay, God, Now What?”

 

 

 

Sigh.

If you ask the retired man I live with how I am, he’s likely to answer, “Mean as a snake.” And you, most likely, will laugh, thinking he’s just being cute.  But he tells the truth, at least a partial truth.

I have a wicked streak in my personality that not everyone gets to see or hear.  Sometimes it comes out as sarcastic comments under my breath during a meeting or workshop.  Sometimes it’s a look exchanged with a friend who knows which person gets under my skin anytime she or he speaks.  Sometimes I just sigh.  I sigh a lot in October.

A week or so ago, my WHOLE daily newspaper was pink. Even the comics and the horoscopes.  I sighed, several times.

A few days later, I walked through the den while the retired man I live with was watching a pro football game.  Pink tights and pink Nike cleats with tight white football pants is not a good look for a beefy offensive lineman.  Or anyone else, probably.  I sighed.

My mother-in-law died of breast cancer, as did 2 of her sisters.  My sister-in-law lives with that genetic legacy.  So do my 2 daughters.  One of their friends had a preventative double mastectomy in her 30’s because of her family history.  I have friends who are breast cancer survivors.

I’m jealous of the Pink for Breast Cancer marketing juggernaut.  Who turned my newspaper pink?  And who talked football players into wearing hot pink tights?

Most families have faced some kind of cancer.

My brother had melanoma twice and died of metastatic cancer of unknown origin.  He had it everywhere and chose not to have treatment and go ahead and die swiftly a year ago.

My mother had throat cancer.  After radiation that killed her salivary glands, she ended up with no ability to taste food and lost all her teeth.

I am a cancer survivor.  I know what that means and how it feels. Nine years ago I was diagnosed with non-Hodgkins lymphoma. Surgery removed one malignant lymph node and another disappeared (??).  My cancer has been in remission since.  I try to forget that it could come back.

My newspaper printed an article recently by Pat Trotta, a local breast cancer survivor.  Here is an excerpt:

Recovery [after her mastectomy on October 1, 2012] was swift and painless, with my biggest problem being cabin fever. As soon as my surgeon gave me the OK to get out of the house, I just put the bulb of my drain tube in the pocket of my jeans and did what most women would do: I went shopping. I was thrilled at the prospect of a little retail therapy so I could quit thinking about the darn cancer.

My first stop was my favorite home improvement store, where the first thing I saw was a display of Pink Ribbon door knobs. My second stop was my favorite office supply store, where I was bowled over by a huge display that ranged from “Pink Ribbon Uni-Ball Gel Pens” to a pink-handled No. 8 scissors that claimed to “raise awareness about breast cancer.”

I was shopping to forget my breast cancer, but instead there were reminders everywhere I looked. I felt like I was in a frantic recurring nightmare, running from store to store, with more pink items ready to attack me behind the door of every retail establishment.

I had to get away from all this pink! I decided to watch a football game, surely a no-pink haven. Wrong! I thought I was having hallucinations when I saw NFL cheerleaders with pink pom-poms and football players with pink cleats. Apparently it has become politically incorrect to ignore pink in October. Employers are forcing their employees to wear pink shirts for a month.

This has gone too far…

I did some research and found that there are 48 colors and color combinations of “awareness ribbons” representing 221 types of cancer. So what about the other 220 diseases? What do their ribbons look like?

My solution is to start referring to October as “Cancer Awareness Month” and include all types of cancers. I actually feel selfish that all the focus and attention is on my type of cancer.

As retailers consider Pinktober for next year, my wish is that these displays would include products in all colors, reflecting all types of cancer.

One of my daughters started making tie-dye shirts last week.  I’m going to ask her to make all of us October shirts using these cancer awareness colors (the ones that have affected our family): Pink (breast), Dark blue (colon), White (lung), Lime (lymphoma), Black (melanoma), Burgundy (head/neck), and Plum (for caregivers).

What colors will you use?

 

 

 

 

Published in: on October 15, 2014 at 3:52 pm  Comments (4)  
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From My Slightly ADD Brain

1.  My new antidepressant and my not-quite-as-new drug for rheumatoid arthritis are working together to get me back to “ME.”  I feel like Robin again and I’m very grateful.  A friend told me yesterday she was glad I was back.  I said, “Me, too.”  I told my therapist I thought I might be on a “pink cloud” and she asked if I meant euphoria.  I said, “Yes!” and that I was afraid it wouldn’t last.  She said she thought maybe I just felt good and I said, “Oh, you mean I’ve reached a level like normal?” She said, “Yes” and we both laughed really hard.  I look back now at how I felt in December and January and recognize I have an illness that, untreated, depresses my spirit and takes away all joy.  I choose today to do all I can not to live that way.  I choose to step fully into each unique day..

2.  My current book is “This Is The Story of A Happy Marriage” by Ann Patchett.  It’s a collection of essays by a novelist.  She writes some about writing and a lot about her life.  I love to read how she puts words together.  In the essay that gave the book its title, she describes the deterioration of one of her marriages.  A friend asked her, “Does your husband make you a better person?  Are you smarter, kinder, more generous, more compassionate, a better writer?  Does he make you better?”

3.  As I get some older–I’m 62 today–I have less physical and emotional energy.  I treasure my energy on any given day.  I had none when my depression was at its worst.  It varies now from day to day.   I think I will use the questions below when I need to choose how to use my time and energy:

Will _____ make you a better person?  Will you be smarter, kinder, more generous, more compassionate, a better writer?  Will ______ make you better?

4.  A week ago we had an ice storm.  Actually, we had a sleet-snow-freezing rain storm that took away the power of 143,000 in our county alone.  The retired man I live with and I lost our electricity for 34 hours, but we have gas logs and a small generator to power tv and lights and the microwave.  Our daughter, son-in-law and their chatty 4-year-old and their constantly moving almost-two year old endured 4 days.  My daughter sounded worse each day in the very brief conversations we had because she had to turn on the car to charge the phone.  She got excited about doing laundry when it finally came back on.

5.  Afterward, we talked about those days without tv, internet, iPad and readily available phone.  Besides the quiet, she noticed her kids playing together more.  She read.  And they all cuddled a lot because the house was colder inside than it was outside some of those days.  Maybe we should have national No Electricity Weekend each spring and fall, with a guarantee of a high temperature between 63 and 78 and no rain so we can go outside.  I bet we’d all read more, play together more, and cuddle more.

6.  I googled “how to be a friend” recently because I’ve been thinking about how I would like to be a better friend to some people I really like, like Kim and Lisa.  My google choices included: how to be friends with a guy, with a girl, with a friend who is sick, with a friend who is depressed and how to be a friend with benefits.  (Google that yourself if you’re not sure what that means, Aunt Nadine.)  I looked at the friends with benefits one, of course.  It was a slide show format that wouldn’t go past #4 (of 10) for me.  I’m not sure what that meant.  The 1st 5 links for “how to be a friend” were from wikihow.com, amazon, selfstairway.com (?), tinybuddha.com, and realsimple.com.  I clicked on tinybuddha.com (here’s the link) and got a list of 25 suggestions that were actually quite good, though not really anything I didn’t already know.

7.  I noticed a behavior pattern of mine while on my “how to be a friend” internet journey.  I’m quite good at finding sources of information about how and why to do stuff (meditate, exercise, pray, write, be a friend/parent/grandparent, eat more fruits and vegetables, not eat sugar) and I enjoy learning, but there is a disconnect in my brain between learning and doing.

8.  I’m going to read about motivation and procrastination.  I’ll get back to you.

Published in: on March 15, 2014 at 5:17 pm  Comments (13)  
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Turtle Pokes Her Head Out

I am an introvert, a Turtle (see “Turtle or Gazelle“), and I’ve been really sad.  This line from the Turtle post sums up where I’ve been:

    Turtle naturally withdraws and goes within

when in turmoil.

It does not need to learn

the importance of this focusing inward,

it naturally knows.

In cancer survivor circles, they talk about Finding Your New Normal.  New Normal comes after a scary diagnosis, falling in love, a death, a birth, a letting go, a child leaving home, a graduation–any life-altering event or moment.

My New Normal includes:

1.  I am the only surviving member of my family of origin.  I used to have a mom and a dad and 2 siblings. (my sister died in 1972).  That’s a lot of memory gone missing.  I still have some questions.

2.  I am really up in my brother’s business and it feels wrong because he was VERY private.  (I’m the executor for his estate.)

3.  I tell people “You better have a will or your family will hate you.”  Yes, my brother had a will and it’s still a pain in the a** to sort out what to do when.  Someone should teach us this stuff at some point.  Thank God for the internet.  And a nice paralegal in Ned Barnes’s office in Carolina Beach..

4.  I am truly grateful for the retired man I live with and am married to, my daughters and sons-in-law, and above all (sorry guys!) my 3 grandchildren.  They stop the sad, at least for a while, and they help me smile and reconnect with what’s real.

5.  I’m not young anymore.  I’m not old yet, but more of my life is behind me than ahead of me.  I want to be aware of every minute I have left–happy, sad, blah, exciting, boring, rainy, sunny, hot, cold or perfect.  Each moment matters.  I guess it always has, but maybe more now.

6.  I read and watch Dr. Oz, the American Ninja competition and Entertainment Tonight instead of drinking, binge-eating, and shopping to temporarily stop my feelings.  Well, sometimes online shopping still acts like it helps, but I’m getting better.  Progress, not perfection, huh?

7.  I think about my brother, Jim, every day.  Partly because there’s stuff I need to do for the estate, partly because his ashes are on the fireplace mantle in the (finished) basement of our house, and partly because I keep remembering I can’t call him because he died.  We probably talked once or twice a month, at best, while he was alive.  I wish it had been more.  So now I feel closer to him than I have for years.  That is sort of confusing.  And why I keep remembering he’s not down at the beach like he’s supposed to be.

8.  Thanksgiving will be hard.  We saw Jim 3-4 times a year.  But he always came for Thanksgiving and Christmas.  He’d drink his Coke Zeros one after the other (he and I both stopped drinking alcohol years ago–bad gene pool.).  He had an amazing caffeine tolerance.  He’d kind of stand back out of the chaos–we were a noisy bunch even before grandchildren–and watch and smile.  We knew he loved us.  And that he liked his not-chaotic, solitary, hardworking life at the beach.  And that was okay.

9.  Jim’s best friend since high school football, Barry, is now my friend, too.  He says Jim was always his quarterback.  Barry was a lineman and his job was to protect Jim.  He is sad, too. We talked on the phone yesterday for an hour and a half.  He told me things I didn’t know about Jim’s past and I told Barry some things, too.  I know my brother better now, thanks to his friends, than I did before he died.  I still love him and I like him even more.

10.  I want to get back to writing amusing or provocative or silly blog posts.  I just had to do this one first.  Thanks for waiting.

(And thank you to the people who have been checking my blog for something new since August 15.  I don’t know who you are, but you are special!)

Published in: on September 11, 2013 at 9:44 am  Comments (8)  
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Litter and Bubbles and Comfortable Shoes

He littered.  The guy in a red pickup truck flat-out littered.  I decided it was a man—I couldn’t quite tell.  He threw a bright yellow box with a red  logo on it (Bojangles, maybe) right out his window.  The box landed on the highway right in front of me.  I crushed it.  That thing had probably surrounded a sausage biscuit or a couple of pieces of fried chicken.  You know it smelled good.

We drove 75 miles an hour on I-40 East, past Raleigh.  I was headed to a week-long mostly silent writing retreat.  He was obviously headed to Hell.

I forget sometimes what a safe bubble of a world I live in at home in Greensboro.  I have a reddish-brown leather chair with a back that reclines and a matching ottoman.  That chair and ottoman fit my short body and sometimes-sore back better than any chair ever.  I read the paper and fall asleep in it.

My husband has changed out the 50-year-old worn brass doorknobs for new lever ones.  Some of the old ones are too hard for me to turn.  A couple of lamps are modified, too.  One turns on when you touch any metal part and one has a big screw instead of a knob to turn.  My husband has a lot to do with my bubble being safe.  I have a Tempurpedic bed and pillow that support my back and let my joints rest peacefully.  I sleep well and long on it, especially when it’s cold and we use the poufy down comforter.

My bubble includes friends who I am sure do not litter.  I doubt if most ever eat fast food from a clam shell box in the car and the few who might, including my husband, would most likely recycle the box.

I live easily and peacefully inside my bubble with my husband, a few friends and, often, two daughters with grandchildren and husbands.  They light up my soul.

I have commitments.  They fit in my bubble, too.  I spend time at a day center for people who are HIV positive called Higher Ground.  Sometimes I help my church bring in lunch, sometimes I lead a writing group, and other days I just hang out.  I feel safe there.  I can be myself.  I know their secret and they trust me enough to tell me their stories.  I learn from them every time I go.

A while back I wrote a blog post titled “You Can Tell By the Shoes.”  A friend and I traveled in her minivan to Atlanta for the Spiritual Directors International Conference.  There were to be 500 of us at a huge hotel and conference center.  We waited in a slow line to check in.

“Hey look, Marjorie,” I said.  “Look at people’s shoes—you can tell who is one of us.”  I wore clunky Teva sandals and so did she.  At least we didn’t wear socks with them.  Other (younger) women wore pointy-toed, stylish shoes, even with tight jeans and t-shirts, that clicked on the polished, bare floor.  Our shoes maybe squeeched a bit and our pants were not tight.

Now I’m at a Women’s Writing Retreat for a week at a big house close to the beach with 7 other women.  We line up our shoes by the front door.  Sandy or dirty shoes we wear outside, then we switch to clean shoes or slippers or just socks.  I didn’t pack my super-thick European hand-knit cotton slipper-socks so I just wear regular black socks.

Here’s what I see by the door at 4:30pm on a cloudy, chilly Sunday afternoon:

4 pairs of broken-in sneakers, for serious walkers, maybe.

2 pairs of black clogs, one SAS and one Merrell.

1 pair of tall black Ugg boots.  I’ve never tried one on.  I almost did just now but I decided that would be nervy and rude.

1 pair of slip-on Reikers.

I pair of flip-flops.  She must have been outside.

1 pair of brown Finn Comfort loafers.

And, yes, I did look inside to see the brands.

I am with my people, again.  No clickety soles.

Published in: on January 8, 2013 at 4:48 pm  Comments (8)  
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Movin’ On

I don’t do resolutions anymore.  They’re always the same anyway.  Eat better.  Move my body more.  Take time for myself.  Stand up straight and do right.  Don’t lie.  Don’t cheat.  Don’t be afraid.

I do reflect on the year just past, though.

January 11, 2012:  Our 2nd grandchild (Margaret Jane–Maggie) was born.

February 25, 2012 (and all year long!):  Our first grandchild (Adaline) was 2.

April 2, 2012:  Our 3rd grandchild (Atticus), Adaline’s little brother, was born.

March and September, 2012:  Maggie had 2 heart surgeries and is all fixed and just like any other delightful almost-one-year-old.  (Thank you, Dr. Mill, at UNC Children’s Hospital!)

April-December 31, 2012 (and forever):  Adaline and Atticus pushed their parents to new levels of love, patience, and sleep deprivation.

January 1-December 31, 2012 (and as long as we live):  We loved them all.

2012 stretched and challenged me physically, emotionally, and spiritually.

So what were the gifts in this full year?

I have 3 healthy, happy, amazing grandchildren!  Christmas 2011 we had one.  Now we have 3.  Mind boggling and tiring and such fun, all at the same time.

I finally forgave myself for not being a “good enough” mother.  My daughters showed me that I WAS a good enough mom and that each day with two  little ones was hard.  A wound I carried in my heart for a long time starting healing.

I have 2 amazing, strong, loving daughters who are much better mothers than I was.  Luckily, we all mostly agree on how to parent.  My younger daughter, mother of 2, coaches her older sister and tells her, “It will get better.”

My husband and I learned to be more gentle with each other.  He is a good father and the best grandfather.  We are aware of time passing and our bodies changing and a drive to miss nothing!  We take care of each other.

I watch how we help our girls (both are close by) and I am painfully aware that my parents were never able to give me the same support and presence.  Now I know how much they missed and I am sad for all of us.

I value friends (and a therapist) who let me be honest and vulnerable.  I cannot do the hard stuff alone.  I tried that this year…again…and it didn’t work…again.

In 2012, I lost a sense of balance between my needs and my family’s needs.  In 2013, I want to do better.  I want to take care of myself, physically, emotionally, and spiritually.  I want to be alive for a long time!

I want to keep learning and growing and stretching and trying new things.  I want to play with my grandchildren.  Their laughs make everything else in the world go away and I am in the moment.  That’s the best gift of all.

I am very grateful.  Many times I had the sense that all of us were held in God’s (roomy) lap.  We were surrounded by prayers and we felt the strength and support and love of our community.

I’m not the same person I was on January 1, 2012.  Are you?  Is anyone?